When I was 18 months old, Mom and Dad took me to The Institutes for the Achievement of Human Potential in Philadelphia. It was a place where they showed us how to do a home program where they would reprogram my brain.
It was crazy. Every hour we had people in and out of our house volunteering to help me. I was surrounded by love. They would have three people, one on each side and one at my head, putting me through motions like I was crawling. I would scream and cry but they didn’t stop. Mom would sing louder than I could cry. We would do that for five minutes, 18 times a day. Then every five minutes a beeper would go off and they would put a mask on my face for one minute for me to breathe into. In between all that they would flash word and picture cards, bang pots and pans to scare me to death, use hot and cold packs, and make me try to crawl down a slide.
So, now you know why I am so crazy and wild. Mom and Dad would take shifts staying up with me when I was on this respiratory patterning machine. It would squeeze me to a beat, so my brain would learn how to breathe properly again. They did this crazy program for almost two years until they got divorced. They knew the program might ruin their marriage, but they did it for me and I love them for it. My dad left us and moved back to Florida. I don’t know why. A friend of ours that volunteered for me was going through a divorce too. Lisa and Justin moved in to help pay the bills. I was three and Bryan and Justin were two. Our moms would let us have a lot of fun. They would cover the table and floor with paper and let us go crazy with finger paints. We made forts out of blankets and chairs and everything else in the house.
Once we were driving up the mountain to go to Santa’s Village. We kept saying, “Are we there yet?” We were almost there when the car quit running. Oh man that bites! Mom and Lisa just got us all out of the car, put me in my wheelchair and stuck out our thumbs. The first truck picked us up and we were at Santa’s Village in two minutes. The whole experience was so funny. When we decided to leave, mom asked a guy in a truck if he could give us a ride down to their car. He said yes, and Lisa came running over with me in my chair and the other two brats too. The guy probably thought these moms were crazy.
My mom and I did a lot together. We traveled all over the world looking for help. I had hippo therapy, chiropractic, reflexology, essential oils, cranial sacral therapy, hyperbaric oxygen treatments, nitroglycerin therapy, biofeedback, OT, PT, and speech therapy.
We moved back to Iowa and I had reached a plateau for about six years and then we found a new therapy in Poland that changed my life. We went to Poland nine times. Each time I would gain 6-12 months of progress in the four week program. It was amazing and I would cry when we left because it was the only place that was helping me get better. We had finally found hope.
The only problem was it would take us hours to travel there and it could cost a lot of money. I didn’t understand why we had to travel clear to Poland to find help. The physical therapy I did there was hard work but my mom bought me presents as rewards for working hard. I wish I would have had this treatment when I was little because I don’t think I would have ever been in a wheelchair.
My mom is an angel who not only gave me life at birth, but also gave my life back to me at the age of one. I give a lot of credit to my mom for not giving up on me. I really love her. I am grateful to all of the doctors, physical therapists, and friends who helped my family when they needed it.
So, that’s my story and that’s the NAPA story. That’s why my mom travels around the U.S. sharing Euromed’s information and now she’s the CEO and Founder of NAPA. She sends therapists around the world to be trained in the best therapies you can find. My brother Bryan joined the team now and he makes sure everyone knows about NAPA so we can help more kids. He is an owner too. Soon NAPA will be a non-profit so NAPA can help children all around the world. I love NAPA and can’t wait to go back because every time I go I get better and stronger. If you have a child you need to try NAPA.
Cody was walking with minimal assistance until he was 21 and had a stenosis in his neck which required a decompression surgery. This surgery paralyzed him. Three different doctors told me he had an injury to his neck at some point and it was compromised. Once again, we refused to listen. After his 3rd week of inpatient rehab, Cody began to move again. He did not get everything back however, he is living on his own is Santa Monica with support. He has caregivers with him most of the time and other times you will see him cruising around Santa Monica visiting “his peeps.” His peeps include amazing individuals who take the time to listen to him and know what he is saying. They visit him in the hospital or take him to lunch. We have been blessed with knowing some of the world’s most beautiful people. If you have a child with a disability, your life will be different. It will be a challenge and you will have hurdles and mountains. After the storms there will be the rainbows and you too will be blessed with complete strangers reaching out to help you. When the road gets rocky and you feel like you can’t go on, just remember “God only gives his special children to special people. You are chosen as very special mother or father, etc. You are very blessed and will see so much beauty in the world. Be thankful and never give up.”
A very special and blessed mom
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